About aliza zara legacy


ALIZA'S STORY

Learn about her legacy

Aliza Zara born on Oktober, 3 2007 earned her wings on May, 9th 2015, at the age of 7 years. Aliza Zara is the daugher of Atia Raja and Waqas, she has a sweet young sister, Marya Insha.

Aliza was misdiagnosed with arthritis in 2011. In June 2012 Aliza had a neurological failure, this lead to another diagnose. She didn’t have arthritis, but NEUROBLASTOMA STAGE 4. The life of this family was turned upside down. The girl who loved to play and dance, as any other kid, was in severe pain. The tumor attached to her kidney, had the chance to grow into her spinal cord. Right after the diagnose, she underwent a surgery. The tumor had to be removed from her spinal cord. Still in pain, she underwent her first cycle of chemotherapy. She completed the Neuroblastoma High Risk protocol. She had a total of 6 high dose chemotherapies, another operation, to remove the tumor from her kidney. A bone marrrow diseasing chemo, followed by a stem cell reinfusion. After this, she underwent radiation therapy from her belly, spinal cord and skull. Aliza completed the Neuroblastoma HIGH RISK protocol and was an eligible candidate for the Immunotherapy in the Childrens Hospital of Philadelphia/ USA. She went to USA in February 2013 with Atia Raja (mother), Marya (sister) and grandmother. She completed the Immunotherapy and stayed there till August 2013. Her last scans in the Childrens Hospital of Philadelphia, showed a progression of disease. They saw tumors inside Aliza’s brain. Again their life turned upside down.

Atia came back to the Netherlands with Aliza and a full brain radiation was given in October 2013. The doctors started the TOTEM therapy, a protocol for children with a relapse. In January 2014, the doctors were amazed by the response. Aliza had no tumors in her brain anymore, there was hope. But their fight wasn’t over yet… in April 2014 after having 5 cycles of this chemotherapy her scans showed new neuroblastoma activity. This new neuroblastoma is resistent to this treatment. Again this brave family had to hear a devastating news. They were broken, but not defeated! The doctors in The Netherlands stopped her treatment, Atia found about a treatment in Germany/ Greifswald, called RIST therapy followed by an Immunotherapy. This treatment was not covered by the Insurance Company.

Atia went through the entire country to collect funds for Aliza’s treatment, she needed an amount of 330.000,- EURO. In June 2014, Atia had enough funds to start the first part of Aliza’s treatment Aliza went through another cycle of radiation therapy and after this she went to Greifswald to start her RIST therapy. Aliza was responding to RIST. In November 2014, Aliza had another operation for an Omaya drain, to prepare her for the Immunotherapy. Unfortunately in December 2014, Aliza had a progression of disease and she was back on the RIST protocol. Every week, this family \drove to Greifswald, in the hope of a cure. End of April 2015, Aliza was send home to The Netherlands, the Neuroblastoma came back, but this time in her liver. On May 9th, Aliza blew her last breath, laying in the arms of her mother.